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Prader-Willi Syndrome Association UK

Charity Contact: Karen Wilkinson 01332 365676 kwilkinson@pwsa.co.uk

Links: Website Facebook Twitter

Forms: Charity Poster Charity Pack

Prader-Willi Syndrome Association UK is the only charity specifically supporting PWS community. With your help we can raise awareness and funds to support this rare genetic syndrome.

About Us

PWSA UK supports parents, families and professionals by providing a helpline, support, guidance, training and publications about PWS. PWS is a rare genetic syndrome where babies are born with low muscle tone and have difficulty feeding. At around 2 years old they then develop an insatiable urge to eat, they often have short stature and learning difficulties. It is incurable.